Well, as normal things change. Now the pulmonary Doctor says she is going to need to be on the ventilator the rest of her life, He says she was falling asleep on him and that's a sign of the CO level rising again. This meaning she would have to be in the Hospital the rest of her life. BUT we have a meeting with the Doctors this afternoon. Something seems funny the last two days she wasn't falling asleep she was awake all day. It could be she was bored or that they kept waking her up all night long and she's tired. But we will find out. And of course will keep all updated.
Well, As we were told today at the meeting. She still can not exhale the CO2 good. But it can change daily at one point she cant then the next hour she can. AS long as she continues to do as good as she was today everything will be somewhat ok. BUT she may need to go on the vent in the future if it kicks up again. One Doctor said that she wouldn't have to be intibated for the rest of her life another said yes she would. Basically as IM understanding it, She could go on and then as she improves be taken off but cant go on and off and on and off cause it would just ruin her throat and then it would go to a trach, but even her Oncologist says don't cause she couldn't be weaned off it, She doesn't want to be on it anyhow. So its a touchy situation cause if she gets worse it's on the vent or slowly let her die. But today She was doing good looks good, she even got out of bed and is sitting in a chair, actually breaths better in the chair but wont sleep like that. She feels human cause I got them to wash her hair :). And she wants a beer. LOL What I have stated here is how I interpreted it to be, but If its not I will definitely change and make it correct. But as I understand as long as she is doing good and gets stronger she would be ok if she's in the Hospital or a Home, but if she was stronger and came home she would only have about 6 months. If she came home now only 6 weeks. So you can see why we are all sort of of stunned.
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