Ah much easier to update with a blackberry. Well she is doing good doctor says she is stronger and doing well. As I understand the last scan came up clean which can mean the cancer is gone or being like it has been one minute it's there next it's not. She also says she is coming home or to mel's this week (don't know if doc actually said that or itys her wishful thinking)

Mom is doing great. She will be coming out of the hospital today or tomorrow but she will be going to an extended care place for a week or so

She was only home for 12 hrs. Turns out that st.alexius sent her home to early. She is up at Centegra in Woodstock Il she is doing great. What really pissed me off and probably the rest of us the wound on her leg was almost healed they barely changed the dressing and when she got to the new hospital the wound was infected again. But she is doing great if anyone would like to talk to her I know she will be happy to hear from you just call
1815.334.3134 ask to be transfered into room 12

Well, she gave us quite a scare. But she is doing good and came home yesterday well to melodys till sunday.

She is doing ok. Awake and not out in leftfield so much just a tad slow. Not out of the woods. Tho incase everyone that would like to see her is coming and should come. Each time seems she gets bit worse. Hopefully will bounce back but for how long.

Just to keep updated. Mom is in the hospital and it doesn't look good. They say that her lungs don't seem to be doing their job and they don't think she'll make it out of this one will keep u updated.

Well mom is home and doing pretty good. Lets just hopes stays that way

Saturday 10 April 2010 10:00AM

Well mom is back in the hospital again. From Wednesday to Saturday she is up at melodays then debbi brings her back her on Saturday and shes home until Wednesday.

Problem again is cO2 level in her blood. We got the Bi pap or Cpap machine for home. I put it on here when she goes to bed. or EVEN at night when when on the couch watching TV cause she normally falls asleep right away. Well this machine is the one for Sleep Apnea so it starts out with a normal air flow for ones NOT used to the PUSH of air. so basically 30 maybe an hour after she goes to sleep it Forces the air into her lungs doing this Helps purge the cO2 out of the blood. SHE say after an hour of going to sleep will get up to go to the bathroom so it comes off and then puts it back on well then the process starts again. 30 to 60 minutes later the machine starts. but then an hour later shes up again this time SHE keeps it off so the machine isn't actually doing anything. She knows she needs to leave it on. got me.

At the moment she is up at Centregra Medical Center on 31 in McHenry going into ICU. She fell asleep last nite and they couldnt wake her up. when she finally did mel got her to bed. then little bit later got up to goto the bathroom and fell. She they decided to call the paramedics.

as soon as I'm updated you'll know to. '

PLEASE PARDON MISSPELLINGS

I was just reading some of my postings. Please just pardon the misspellings. Most of the time I'm updating from my phone and if any of you text you know how it can be if You don't hit that number so many times to get the right letter or hit that space. So I apologize. But I think you can figure out what is being said.

FINALLY HOME

She finally came home today after three days of being told your going home then nope. BUT of course not without trouble. First the Doc or someone called me with all the instructions on medication and wound care are such. Mom calls and says ok come around noon. SO well 1220 I go there. TO FIND OUT. She wont be going home unless he has another Oxygen concentrator at home. BRAKES>>>>>>>>> we have one. Well seems the doc says she needs 15 liters of oxy when she walks THO they don't want her walking for 2 weeks but over all Unless there is a oxy machine that pushes 15 NO GOING HOME. Then it was 5 hours of whats going on. No one saying anything. ok. I go home cause pops was going to be there shortly.

Finally around 5 pm I think maybe bit earlier they arrive with the second oxy concentrator then the arguments, they want to take upper machine which fills the portable bottles. WELL seems since they reavaluated here and shes on 4 liters sitting and 8 when walking (NOT that she can walk for 2 weeks) She can not use the little bottles cause something like they don't make the little bottles for 8 liters those are continuous flow instead of the breath burst ( it would put ouch oxy every time she breathed in and not lose all the air in the tank as a continuous flow does) so never the less the installer is playing i was confused and left the filler for the weekend. AND the bipap.

NOW the bipap :) THIS is fun...... small unit which actually doesn't need the oxy but since shes on oxy you can attach. it is actually the same machine they use if you have Sleep apnia. It forces air into your lungs. BUT for her case it forces air into here lungs to help scub the c02 out of her blood. The pic below looks like alien but its not it's mom asleep on the couch with the bipap on. Finally had put it on for 3 hrs came out to find out she took it off cause she said it wasn't working. its not like the one in the hospital where its full force the minute it's put on. this one starts soft to full force to get people used to it.

This hospital is aggrivating. We were told she could go hoe today so i came up with her clothes to be told she wont be able unless she has 2 air concentrators, cause they are saying she needs more air to goto the bathroom. Aggrivating.

Well. All thought she was coming home today but thanks to the wound which they are saying is limb threatening shes not. All thoughts of st. Alexius its still humana. No one there seems toknow wats going on. If they were taking proper care of the wound it woudn't be bad she has been there a week and i dont think they have looked at the leg maybe twice.

Mom is doing good. Lil high blood pressure today but it finally came down. Breathing is ok as lomg as she isn't exerting herself and still eating to fast and aspirates now and then. But over all looks ok

She is doing good. Off the morphine so no nne is trying to cut her in half anymore. Came of the bipap machine and is breathing real good. Now if she would just remember to eat slow so she doesn't keep bringing it back up into her lungs.

They Cutting me in Half

Don't ask LOl. The last day and a half have been pure well only thing I can say is Hell. We spent most of the day yesterday in the Er. Then finally 11:30am she finally gets a room. SO up we go upto 644 we get up there and the girl who is transporting her is talking to a nurse , seeing something is kinda wrong I go over to see whats wrong. THAT nurse totally ignores me and tells the girl " I Don't Want her here" I said to myself " YOU don't want here here. Shes assigned her YOU have no choice." Well we start to go back down and when we get to the Elevators the girl calls the person in charge of rooms assignments and Yes she is supposed to be there.

We go back to the same desk this time miss attitudes not there. and no one seems to know their left from their right so I ask for the head nurse. She comes and asked whats the problem I nicely said what was happening at this time the nurse sat down and I said NOT to quietly This nurse here has an attitude problem and should not be by patients. and I told her what had transcribed. Well short we finally got her tot he room she was to be in . She had her lunch and was ok. at 2pm I said I'm going I couldn't stay awake anymore.

Fast forward to 3:25. The Nurse calls and tells us that they are going to move her to ICU because her C02 levels is to high. so they do. pop goes up around 5. me Did a few things and fell asleep for few hours.
Pop comes home sometime after 9. THEN THE Fun begins. 9:30 we get a call from the nurse. Nancy wants to talk to your day. well shes got the BiPap on she cant really talk and he couldn't hear here. I called back and with help from the nurse found out was all about a puzzle book. 10:30 The doctor calls and says that he doesn't think shes going to Last the night because she is breeathing way to fast and yada yada. 11:00 The nurse calls. Nancy wants to talk you. ok. "Whats up mom" Her response " They cutting me in half" I kept telling her they are not going to cut you in half. Just calm down and relax and goto sleep. 11:30 the nurse calls again. mom wants to talk again. "THEY are cutting me in half" NO Mom they are not cutting you in half. " I'm scared to death" I know you are but you need to calm down and relax or you wont get better. LOL well in the end Pops at 11:30 went back to the hospital cause she wanted someone to be there cause THEY were going to Hurt her. so He still has not had sleep but finally came home after she calmed down and started to breath better.

She had a catscan for her cancer and the resolts are the cancer looks good. Not sure if that means it's getting smaller or what.

Well. 3am seems to be the good time to call paramedics. Mom woke to goto the bathroom and didn't make it. So weak couldn't stand anymore. We struggled for a good 25 minutes and we couldn't even het her up enough to get her to sit on the walker.so decision was made and the paramedics called. So we are still in emergency at st. Alexius at 8:15am. She has a fractured rib on left side but that didn happen tonite. She has gallstones but all looks ok. They are going to admit her.

She is doing as good as she can. She has to come to terms that she cant do anything anymore. She gets tired and hard to breath just walking 5 feet. She also needs to eat slower cause she aspirates into her lungs.

Well. She is coming home today. For how long this time.time will tell

I apologize I forgot to update been so busy. Well 2 Weeks ago this monday she went back into the hospital due to shortness of breath. She came home friday night to turn around and go back in sunday night. WELL she was supposed to come home lastnite but as she was getting dressed she had another cant catch my breath so nurse said nope your staying. She is doing ok guess her legs have swollen up again more then they used to. Will keep you updated promise.